New Adult Hemophilia Quality of Life Tool Now Available for Hemophilia Community
October 20 2004 - 9:01AM
PR Newswire (US)
New Adult Hemophilia Quality of Life Tool Now Available for
Hemophilia Community Multinational Validation Study of Haemo-Qol-A
Presented at WFH Congress RESEARCH TRIANGLE PARK, N.C., Oct. 20
/PRNewswire-FirstCall/ -- Data validating the first and only
available health-related quality of life (HRQL) instrument for
adults with hemophilia were presented today at the World Federation
of Hemophilia Congress in Bangkok, Thailand. Bayer Biological
Products (BP) has supported the development and validation of
Haemo-QoL-A in an effort to measure, in a meaningful way,
health-related quality of life (HRQL) information for adults living
with hemophilia. The new instrument will allow more complete
evaluations of the effects of hemophilia care on people's lives,
assisting clinicians, reimbursement agencies, and governments in
their decisions regarding treatment options. Haemo-QoL-A builds on
an earlier Bayer initiative to develop an international pediatric
hemophilia- specific quality of life instrument, known as
Haemo-QoL. Results from this clinical study confirmed Haemo-QoL-A's
internal consistency, reliability, reproducibility, and validity.
Study findings also supported establishment of six subscales:
physical functioning, role functioning, worry; consequences of
bleeding, positive affect, and treatment concerns. Haemo-QoL-A was
able to detect differences among these subscales based on severity
of disease, and presence of HIV. A difference also was detected in
the physical functioning subscale when comparing patients utilizing
on-demand vs. prophylaxis treatment regimens. Additionally, a
symptom scale was developed as part of the project to measure the
clinical severity of the disease from the patient's perspective.
"These results indicate this disease-specific HRQL instrument is a
reliable and valid measure of the patient perspective on
hemophilia-related quality of life," said Anne Rentz MSPH, research
scientist at MEDTAP International, whose team collaborated with
Bayer scientists and an international advisory committee of experts
in hemophilia and outcomes research. "We are looking forward to
additional research to confirm responsiveness, and to define what
level of changes in patient HRQL is clinically meaningful." Data
were collected from 221 patients, aged 18 to 82, in the United
States, Canada, Germany, and Spain with an instrument that utilized
a six- point Likert-type scale. Questionnaire items were derived
from the clinical literature, clinical input, and patient and
treater focus groups in North America and Europe. Cultural
adaptations ensured consistency of meaning in three languages and
four cultures. The final instrument, based on the results of this
study, contains 41 questions comprising the six subscales.
Responding to requests from the hemophilia community for a disease-
specific instrument to effectively measure HRQL, Bayer BP Clinical
Development has invested more than $600,000 to develop and validate
Haemo-QoL-A. "Bayer's initiative in developing and
validatingHaemo-QoL-A adds a significant new assessment tool to
measure effects of treatment for hemophilia that goes beyond the
traditional ways of measuring efficacy and safety," said Dr. Eduard
Gorina, Global Clinical Projects Leader for Kogenate(R). "We now
have one global instrument that can be used in international
clinical trials, as well as in the clinical setting to assess
outcomes from regimens such as primary prophylaxis or immune
tolerance induction. Haemo-QoL-A also can be used to assess quality
of care rendered in a particular hemophilia population, at a
particular institution, or in a particular country. Such an
instrument has been greatly needed by the hemophilia community for
many years." Michael Mathews, vice president, Global Strategic
Marketing, Kogenate(R), commented on the importance of this work.
"Haemo-QoL-A is the first validated instrument to measure the
quality of life in adults with hemophilia. Responding to an unmet
need of the hemophilia community, Bayer BP is the global leader in
developing these instruments in adults and children so that
treaters, institutions, reimbursement agencies, and governments can
more fully evaluate the lives of persons with hemophilia. Among
other uses, these instruments will now allow us, as a community, to
assess and make funding decisions regarding treatment options that
help people with hemophilia live more closely the lives they
choose." About Bayer HealthCare AG Bayer HealthCare AG, a subgroup
of Bayer AG with sales of approximately 8.9 billion Euro in 2003,
is one of the world's leading, innovative companies in the health
care and medical products industry. The company combines the global
activities of the divisions Animal Health, Biological Products,
Consumer Care, Diagnostics Professional Testing Systems and
Diagnostics Self Testing Systems and Pharmaceuticals. 34,600 people
are employed by Bayer HealthCare worldwide. Our aim is to discover
and manufacture innovative products that will improve human and
animal health worldwide. Our products enhance well-being and
quality of life by diagnosing, preventing, and treating disease.
Information about Bayer Biological Products Division can be found
at http://www.bayerbiologicals.com/. Forward-looking statements
This news release contains forward-looking statements based on
current assumptions and forecasts made by Bayer Group management.
Various known and unknown risks, uncertainties, and other factors
could lead to material differences between the actual future
results, financial situation, development or performance of the
company and the estimates given here. These factors include those
discussed in our public reports filed with the Frankfurt Stock
Exchange and the U.S. Securities and Exchange Commission (including
our Form 20-F). The company assumes no liability whatsoever to
update these forward-looking statements or to conform them to
future events or developments. DATASOURCE: : Bayer Biological
Products CONTACT: Tricia McKernan of Bayer Biological Products,
+1-919-316-6316, Web site: http://www.bayerbiologicals.com/
Copyright