PHILADELPHIA, May 6, 2024
/PRNewswire/ -- NephCure, a leading nonprofit organization
dedicated to finding better treatment options and a cure for rare
kidney disease, proudly announces the launch of its new website,
NephCure.org. The revamped online platform serves as a pivotal hub
of information and home for all individuals and families affected
by rare, protein-spilling kidney diseases.
NephCure, a leading nonprofit organization
dedicated to rare kidney disease, announces new website.
With more than 20 years of dedication to the entire rare kidney
disease (RKD) community, NephCure has meticulously crafted the new
NephCure.org to serve as a comprehensive and user-friendly
destination. This updated website moves the organization another
step closer to achieving its vision: to build a world where
everyone with rare kidney disease has access to new and better
treatments, and one day a cure.
"This website represents a significant step forward in our
ongoing efforts to empower and support individuals and families
affected by RKD. We believe that by providing a centralized
platform for vital current information and resources, including our
unique matching tools to connect with expert physicians and
clinical trials, as well as community engagement, we can drive
continued impact and developments within the RKD space," NephCure
CEO Josh Tarnoff said.
The new NephCure.org offers a variety of helpful features and
functionalities tailored to meet the diverse needs of the entire
RKD community:
- Search for and Connect with Local NephCure Specialists:
Individuals can easily search by zip code and connect directly with
local NephCure Specialists who specialize in rare kidney diseases,
ensuring access to specialized care.
- Easily Find and Enroll in Active Clinical Trials:
Patients and caregivers can conveniently find and enroll in ongoing
clinical trials, contributing to the advancement of research and
the development of new treatment options all while receiving the
best care possible.
- Search and Filter the Latest RKD Resources: Users can
access NephCure's collection of the resources, educational
materials, videos, and other support information related to rare
kidney diseases.
- Browse RKD Patient Stories: The website features a
vibrant collection of patient stories, providing inspiration within
the RKD community.
- Engage with the RKD Community Through Events:
Individuals can participate in community events, support groups,
fundraisers, and other initiatives aimed at fostering connections
and providing additional support.
The launch of the updated NephCure.org
comes at a pivotal time when advancements in research and treatment
options for rare, protein-spilling kidney disease are rapidly
evolving. By providing this comprehensive online resource, NephCure
aims to promote continued research, accessibility to support and
information, and ultimately aid in finding better treatments and a
cure for everyone affected by RKD.
For more information about NephCure and to
explore the new website for yourself, please visit
NephCure.org.
About NephCure:
NephCure's mission is to empower people with rare,
protein-spilling kidney disease to take charge of their health,
while leading the revolution in research, new treatments, and care.
Founded in 2000 by a group of committed patient parents, NephCure
has invested more than $40 million in
kidney disease research and helped create a landscape where there
are now new treatments and more than 60 interventional drug trials
for rare kidney diseases. NephCure is a U.S. tax exempt 501(c)(3)
public charity.
CONTACT:
Kylie Karley
kkarley@nephcure.org
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SOURCE NephCure